Risking Significance

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25 July 2008

It's Time

The tumor is growing despite 14 months of chemo, radiation, and Avastin, and is the likely cause of Torch's problems with speech, balance, movement, confusion, etc. There are no other reasonable treatment options and it's time to stop. When we tried to pin Dr. Smile down on the time she has left, he said to think in terms of weeks or months, not a year or more.

We cried some, laughed some, and talked to many of you (and wish we could have talked to you, too, who are seeing the news here for the first time). Torch decided that it's time to go home; at this time next week we'll be on the Cape to stay as long as we can be together.

This blog will be silent from now on unless there's major news to share. Torch asked me to end it this way, mostly drawn from the end of "Inside Her Brain...," the predecessor of "Risking Significance".

It's time.
I will not die an unlived life.
I will not live in fear

of falling or catching fire.
I choose to inhabit my days,
to allow my living to open me,
to make me less afraid,
more accessible,
to loosen my heart
until it becomes a wing, a torch, a promise.
I choose to risk my significance;
to live so that which came to me as seed
goes to the next as blossom,
and that which came to me as blossom
goes on as fruit.
Peace out.

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11 Comments:

  • At July 25, 2008 11:22 AM , Blogger Becky Cavender-White said...

    Unfortunately, as one of the 'hotties', I was not at work today to hear the news; however, K did pass on Bill's beautiful email to each of us. I just want to tell you, Rachel, that I'm grateful I've met you. And I'm grateful for your beautiful, honest blog. I will keep you, Bill, and your family in my thoughts. Thank you for sharing yourself.

     
  • At July 25, 2008 12:42 PM , Anonymous Ashley (NAF) said...

    God grant me the serenity to accept the things I cannot change. The courage to change the things that I can. And the wisdom to know the difference.----I love you Rachel, you delicious Jew, you. (one of many of our inside jokes that I dont plan on givin up any time soon)

    Ashley

     
  • At July 25, 2008 2:22 PM , Blogger Mike Stevens said...

    Hi, Rachel. I'm Mike Stevens, Bill's classmate at Haverford College. I hope Bill has shared with you our correspondence since we reconnected on Facebook a couple of weeks ago. I told Bill that you're an extremely thought-provoking writer, and that he's very lucky to have found you--but of course, he already knows that!

    I want to thank you for sharing your blogs so generously and selflessly. Your writings are most uplifting and inspiring.

    As you bgein this next chapter of your life, I want to wish you--as one Jew to another, as your blog might say--every possible wish for strength, comfort, freedom from pain, and peace of mind. Please know that my thoughts and prayers are with you and Bill at this most difficult and trying time.

    Yours,
    Mike

     
  • At July 25, 2008 4:11 PM , Anonymous Anonymous said...

    Rachel,

    Your courage and strength inspires me everyday. I am so lucky to have been touched by your beautiful smile, your mischievous giggle, and warm heart. You have lived life as we all should, to it's fullest and I will forever treasure you.

    Much love,
    ellyn

     
  • At July 25, 2008 7:28 PM , Anonymous Joe and Jane Regan said...

    Hi Rachel,

    This is the blog entry we hoped never to hear. Your courage, humor and spirit of indominable hope inspire us all. We hope that the days ahead are filled with special moments with those you love. You will be in our thoughts and prayers and we thank you for all you have given us.

     
  • At July 26, 2008 8:09 AM , Blogger Lia said...

    I read Bill's WACDTF email and learned about the cancer-- I never met you, but any time I escorted with Bill he spoke of you often and so lovingly. My thoughts are with you both. I hope that the Cape is beautiful.

     
  • At July 29, 2008 7:28 AM , Anonymous Anonymous said...

    Rachel

    Peace be with you and Bill.

    Babette

     
  • At July 30, 2008 10:36 AM , Blogger sfbette said...

    Rachael + Bill -

    i know it's been so very many years (30? 35?) since we saw each other last, but I wanted to let you know that my thoughts and prayers are with you and your family...may peace and love be with you always

    - clair carter-ginn
    (daughter of Rae and Bob Ginn)

     
  • At July 30, 2008 1:52 PM , Anonymous gertrude hughes said...

    Your poem becomes my prayer for you, dear Rachel. I'm grateful that you and I could hold hands at your grandmother Ruth's memorial service in May and that you and Bill will be together on the Cape now. With love and great esteem for you both. Gertrude

     
  • At August 05, 2008 8:11 AM , Blogger Dolores said...

    Rachel,

    Your Aunt Marjorie and Uncle Scott shared your blog with me. Over the years Marjie has consoled me with stories of you as I was/am sailing the unchartered waters of brain tumor life being the sister of a brother with an astrocytoma.
    Thank you for being so honest. I absolutely love the poem.
    Blessings to you as you continue to carry out your lessons and may you be open to all the love that surrounds you.
    Peace,
    Dolores

     
  • At August 12, 2008 9:18 AM , Blogger Gina said...

    Dearest, dearest Rachel,

    I just heard the news and have no words for the sadness. It has been far too long since we've seen each other, but I always think of how you made me laugh when we'd escort together up at NW, and how you gave me so much courage when I got my own not so fun diagnosis back in 2004. You are an extraordinary soul, someone I feel privileged to call a friend, even if time and distance separated us. Go gently, and know you are so loved.

    Gina

     

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