Having the Blues
Torch has asked me to post tonight. She feels she is far behind on maintaining this blog.
The good news is that the tension, anxiety, and involuntary fidgeting the steroids had brought on have subsided now that she is taking two mood stabilizing drugs. What a relief, and what a joy to be sleeping again!
The bad news is that her body is again betraying her. She is falling more, having trouble putting words together, and sleeping at every opportunity. And she is enveloped in sadness and rage.
She will be working with her small army of doctors to get the bad symptoms under control and become more like herself. In the near future we are counting on the Avastin to free her from both the steroids and the need for other meds to help with the steroids.
She hasn't quit fighting. On Saturday we walked with our friend to a local restaurant for the first time in months, a grueling trek for her. Last night we went to Blues Alley for a CD release party - not her fault that the show was a disappointment, especially after our last outing to Step Afrika was such a success!
Stay tuned.
The good news is that the tension, anxiety, and involuntary fidgeting the steroids had brought on have subsided now that she is taking two mood stabilizing drugs. What a relief, and what a joy to be sleeping again!
The bad news is that her body is again betraying her. She is falling more, having trouble putting words together, and sleeping at every opportunity. And she is enveloped in sadness and rage.
She will be working with her small army of doctors to get the bad symptoms under control and become more like herself. In the near future we are counting on the Avastin to free her from both the steroids and the need for other meds to help with the steroids.
She hasn't quit fighting. On Saturday we walked with our friend to a local restaurant for the first time in months, a grueling trek for her. Last night we went to Blues Alley for a CD release party - not her fault that the show was a disappointment, especially after our last outing to Step Afrika was such a success!
Stay tuned.
Labels: MedSpeak
posted by Bill @ 9:01 PM
2 Comments:
At July 02, 2008 7:21 PM ,
Mama said...
Sleep and music must be a blessing, (except when disappointing); the rest seems so hard, so very hard. I am grateful that you are together.
At July 03, 2008 9:08 AM ,
Andrea said...
We will all stay tuned, grateful to both of you for sending out a signal, even when the news is difficult and complex. The messages bouncing back from here and from all over the place are love, love, love.
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